In a remarkable moment of recognition, Yasmin Elsamra Foundation – DEBRA Egypt participated in MENA Congress for Rare Diseases, held in Abu Dhabi from April 7th to 20th. The foundation’s involvement, which included a keynote role and an award-winning presentation, stands as a testament to its unwavering commitment to improving the lives of patients suffering from Epidermolysis Bullosa (EB) across Egypt and the broader Arab world.
The congress brought together global thought leaders focused on rare disease research, treatment, and policy. The MENA Congress for Rare Diseases serves as a vital platform for sharing knowledge, discussing challenges, and exploring innovative solutions in the realm of rare diseases.
Recognition and Awards
The recognition did not stop there. Among 33 exceptional poster submissions, the Yasmin Elsamra Foundation’s research and advocacy poster was selected as one of the top five winning entries. “Being invited as Chairperson and share the foundation’s impact on such a prominent platform has filled me with profound gratitude and happiness,” said Hanaa Elsadat . “It’s been truly humbling to witness how our collective efforts are creating real change for patients who need it most.”
Team Effort: Mission of Compassion and Impact
The foundation’s success at the congress was not achieved in isolation. With over 400 EB patients supported through medical care, advocacy, and awareness programs, the Yasmin Elsamra Foundation has become a lifeline for individuals grappling with this debilitating genetic condition.
A Future of Hope and Awareness
As the global spotlight continues to shine on rare diseases, the Yasmin Elsamra Foundation remains steadfast in its mission to raise awareness, provide care, and advocate for the underserved. Their presence at the MENA Congress symbolizes not just recognition, but a renewed commitment to the cause.
This accolade reflects the foundation’s dedication to advancing medical understanding and raising awareness of Epidermolysis Bullosa within the global rare disease community.
Commitment to Future Endeavors
Yasmin Elsamra Foundation remains steadfast in its mission to improve the lives of those affected by Epidermolysis Bullosa and other rare diseases, inspired by the resilience of the EB community and the collective efforts of all stakeholders involved.
